Jenster's Musings

Saturday, September 12, 2009

Just Another Oncology Appointment

This coming Wednesday I’m going to see my wonderful oncologist, otherwise known as The White Russian, for my 6 month check up. I’m pretty sure I know how it will pan out. I’ll sit in the waiting room happily reading until the nurse calls my name. She and I will walk back to the nurse’s station while she blames me for the weight she’s gained because I happened to tell her about Hope’s Cookies and now she can’t ever drive by there without stopping. Then, just to be spiteful I’m sure, she’ll make ME stand on the scale (at which time I’ll tell her again that I’ll be a good 30 pounds less the next time she sees me) and drain a couple vials of blood from my arm.

Once I get to the examination room I’ll be depressed about the weight she just recorded for all of eternity and The White Russian will walk in, disturbing my lamentations, and say how great it is to see a healthy person. Then I’ll feel bad about my whining when I would take every single ounce and then some if it meant not having cancer anymore.

He will ask how my summer was and what my family did. I’ll tell him we drove to Arkansas for a week to visit friends and family and how we didn’t get to see half the people we would have liked to. Then I’ll tell him how I flew to Seattle the following week to spend some time in a beach house with four other women. We’ll also talk about the tight, tingling, almost painful pressure my left arm feels whenever I fly or even ride in the car for any length of time without any support and he’ll look for signs of lymphedema. Thankfully he won’t find any unusual swelling and I’ll be told to keep wearing the compression sleeve when I fly and hopefully we’ll dodge this particular bullet.

After that we’ll discuss the stiffness in my joints and other bodily aches and we’ll decide that since it’s not debilitating pain I’ll just remain on the Arimidex for another 15 months. This is when I’ll realize I’m only little more than a year out from my 5-year goal and that will make me happy.

Most likely The White Russian will order a bone density scan because the combination of no ovaries and the Arimidex make for early onset osteoporosis. He’ll also probably decide I should have a colonoscopy because I haven’t had one yet and colon cancer is somehow closely related to breast cancer. Not only that, but there is a history of colon cancer in my family.

We will also look at my blood work which will no doubt look good except for my white count and other immune system related values. They might be within normal limits, but I can tell you right now they’re going to be low. How do I know this? Well for one thing they’re always on the low side of normal. In the nearly four years I’ve been finished with chemo they have never gotten very far above the line. But I’ve also managed to wear myself down which always results in a thick and swollen tongue, my own personal telltale sign of a low WBC. When it’s really bad, like it was after my trip to Seattle, minor cuts and blisters won’t heal and I’ll get a funky feeling that I just can’t describe so I’m not even going to try.

Thrown in between all this clinical stuff he’ll ask about my kids. When I tell him Taylor is now a senior in high school he’ll ask about his desired major and college. He’ll also ask how Katie likes high school and what do I think about being on this end of parenting. The White Russian will tell me a little about his family and their summer and before I know it my visit will be over.

I’ll then get to Peggy’s desk and we’ll chat for a moment and schedule my next appointment for sometime around March or so. And while I’m so happy I don’t have to make weekly or even monthly visits to the oncologist anymore, I’ll be just the teensiest bit sad that I don’t get to see these people for another six months. But then I’ll stop at Starbuck’s on my way home for a Venti White Chocolate Mocha with whip (Weight Watcher’s points don’t count on oncology days) and all will be right with the world.

I do wish I hadn’t gained all this weight (which I blame all on the various treatments I’ve been through since diagnosis) and I would love it if my body would be more cooperative and less stiff and achy. I’m very conscious about the possibility of lymphedema and I’m a little angry about the whole osteoporosis thing. The thing that bothers me the most right now is the white counts and the swollen tongue. How weird is that? It’s always swollen, but it gets worse when I’m feeling bad or overly tired and it gets in the way when I’m trying to talk and I’m always biting the sides with my sharp carnivorous molars.

Nobody ever tells you about all the stuff you have to deal with AFTER treatment, even if you don’t have any more cancer. But I’ll take all of it just to get to my 5-year goal and hear those magic words, “No Evidence of Disease”. And as I'm driving home I'll start relaxing, even though I didn't realize just how tense I was. I always expect a good report, but somewhere in the far reaches of my mind I suppose I fear the worst.

Finally, I'll start thinking about those I know who don't get to hear those words that I'm sure to. The women who are dealing with a recurrence or a metastasis, those who seem to be losing their fight, and especially those we've had to say goodbye to. My joy at another good report will be dimmed by the sadness for those who are not as fortunate and I'll be reminded just how horrific cancer is.

And in six months I'll do it all again.

Cross-posted at Mothers With Cancer

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Saturday, March 21, 2009

I Can't Be Depressed. I'm A Christian.

WARNING: The following post may be lengthy, convoluted, angsty and just plain lousy.

I have always been a pretty happy person. Things never really bothered me, I got along well with just about everybody, I was usually good for a smile or a laugh. I'm still that same person, but something has changed over the last couple of years.

Depression is just not something I've ever had to deal with. Oh sure, I've been sad - I suppose I've had situational depression. I would guess everybody has that at one time or another. But I've never suffered from clinical depression. Even when I was diagnosed with cancer; even when I was going through chemotherapy; even when Todd was living 1200 miles away - I don't think I was clinically depressed.

Now? I'm not so sure. Not ever having experienced it before I'm not positive what I'm going through. The word depression has flitted through my conscience, but I dismiss it as soon as it shows up. I'm hesitant to go see my doctor about this because I fear he'll take the easy way out and say, "Yeah, you're depressed. Take a happy pill once a day and you'll be fine." Now I'm not opposed to that if it's what I truly need, but I want to be sure before I start popping pretty colored capsules on a regular basis.

A friend of mine used to suffer from severe clinical depression complete with feelings of hopelessness and suicidal thoughts. She fought professional help because she had been told one time or another that good Christians didn't suffer from depression. She also tried to kill herself. Thankfully she has since gotten the help she needs and today she is a happy, thriving, GOOD CHRISTIAN, who manages her condition with medication and counseling. I remember feeling so angry on her behalf that she would have such baggage. Real depression is a physical condition, not a weakness of the mind.

What I'm struggling with in no way mirrors my friend's struggles and yet I find myself thinking, "If I was just closer to God I wouldn't be feeling this way." Makes me want to smack me. Now don't get me wrong. I wholeheartedly believe Jesus keeps me stabilized. In fact, I KNOW Jesus keeps me stabilized. I'm sure my emotions would be even messier without Him! But there's definitely something else going on that hasn't before.

So what IS going on? Is it because my hormones have been totally out of whack for the last few years? I suppose it could be. I've also read (but I can't remember where so I don't know how reliable this source is) that chemotherapy can cause the chemical imbalance which, in turn, causes depression. I know it's not a thyroid issue (which can cause similar symptoms) because I get that checked every six months.

But I'm always tired and run down. We missed a party last weekend because by 4:00 my head felt like it would explode and I just wanted to sleep. We made it to a different party this past Friday, but as much as I wanted to go (and did have a great time), I would have been content to stay at home and chill on the sofa. Today I was going to go into Philadelphia with a friend of mine for fun and a free photography lesson (she's an awesome photographer). I had to back out because I've been "too tired and distracted" to finish up something I'd committed to do a while go and it needs to be done by tomorrow.

My house is a wreck and I hate it like this. I've never been an exceptional housekeeper, but neither have I ever been as bad as I am now. I care and yet I don't care. I want it to be clean and tidy but the effort is too much. For a while I just figured my cleaning skills were stagnant from being waited on so much during treatment. That was over three years ago, however, so that excuse has gotten pretty thin. I'm just plain lazy. Except I was never this lazy before.

Most of the time I don't feel sad so I can't be depressed, right? I'm just always tired. Unless I'm busy doing something. I love my job and I don't seem to have the lazy or tired problem there. But when I get home I'm too exhausted to do much of anything. If only I would eat better; exercise regularly; pray and or study my Bible more I would feel like I used to, right? If I would lose weight I would feel better about myself. If my house was clean I would feel better about myself. If I would accomplish something worthwhile I would feel better about myself.

This morning as we were getting ready for church I complained to Todd about having a headache and being tired even though I had a good 8 hours or so of sleep last night. Very cautiously he said, "I'm going to tell you something and I don't want you to get defensive. I just want you to think about it. You might be depressed." Instead of getting defensive or thinking about it I told him I thought he might be right.

We talked about it more this evening and I've decided to call my doctor tomorrow morning. Todd came right out and said I've not been the same for a while. The funny thing is I was fine during the year from hell. So why am I not fine now? Who knows? I suppose I don't have to know.

There's a part of me - a fairly large part of me - who hopes I am depressed. It would explain so much of my behavior that I don't like at all. My laziness, my lack of concentration, my inability to stick to any type of exercise regime or eating plan - things I never had problems with before. Gosh! Maybe that's why I don't read like I used to. If there is a medication that I could take temporarily and would help me straighten out my wonkiness that would be great!

But here's my fear. From the minute I was diagnosed nearly four years ago I became the sole object of Todd's focus. He treated me like a queen, doting on me every second. When I had my mastectomy the following week he would hardly let anyone near me. He emptied my drains, bathed me, Veeted my legs, brought me food, set me up in the chair or in bed, made sure I was comfortable -- you name it, he did it. I worried that as soon as he was left alone and given time to think about our situation he would have a breakdown. Ten days after my surgery he got in his truck and left for the 1200 mile drive.

The first day was fine and he drove to Bristol, Virginia. The next morning after about an hour or so of driving he ended up in an ambulance on his way to a hospital with heart attack symptoms. It all caught up to him and he was put on an antianxiety and an antidepressant. After we were reunited as a family and everything was good again he tried to go off the antidepressant. Turns out the withdrawals from this particular medication are as bad as the original symptoms. So he's on this drug indefinitely and he hates it. I'm afraid of that happening.

I hope this post hasn't given the impression that I'm always sad or mopey or distraught. Nothing could be further from the truth. I'm not severely depressed - I don't feel hopeless and I'm not having suicidal tendencies AT ALL. It doesn't effect my job or my marriage or my parenting (I don't think, anyway). I would guess most people I know have no idea I've been having these struggles, though there were a couple people at church this morning who could tell something wasn't right. But that's because all of this came to a head today.

So why tell you all this? I'm not sure. Maybe for some wise words from those of you who have similar struggles. Maybe for prayers. Maybe because writing all this down is good therapy. Or maybe just to say that even a good Christian can be depressed.

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Mused by Jenster :: 7:10 PM :: 20 People musing:

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Thursday, March 12, 2009

A Heavy Heart

Some very special friends of ours are going through something horrendous right now. Todd and I have both shed tears today at the thought of their circumstances and the difficult decisions they're facing. "Difficult" seems too benign a word. Sometimes recipes are "difficult". Sometimes people are "difficult". Parking a landboat in a crowded lot is "difficult". What they're experiencing right now goes so far beyond "difficult", but I don't know what other word to use.

The one shining light in all this? I can't elaborate, but these friends are more extraordinary than we ever realized and it is a blessing to see how God is at work in their lives even through this mess. At how they're ALLOWING God to be at work in their lives even through this mess.

This is only the beginning of what will be a terrible season of their lives. My heart is breaking for them and if I hurt this much, how much more do they hurt? Please pray for them. You don't need to know the details. God knows exactly who you're thinking of.

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Mused by Jenster :: 9:17 PM :: 11 People musing:

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